Disclaimer:  I debated writing this today.  I’m in a pretty thick fibro fog, which makes organized thought a rough task.  I haven’t written much lately due to a quick but necessary move and a short stint in the hospital, so I decided to take a chance.  Forgive the slight leaps and jumps.  This was important.

As far as I am concerned, we live in a time and place where medical science is at least slightly more than trial and error when it comes to diabetes, that is, unless the patient happens to need hospitalization.  The problem is not lack of knowledge, it is lack of education on the part of most doctors and nurses.

When I first met my current Internal Medicine doctor she admitted she lacked specific knowledge on diabetes and referred me to an endocrinologist for anything diabetes related.  This seems to be a general condition of doctors treating patients in any hospital across America, and believe me, I have been in enough of them to know.  In the past I have had hospitals take me in then refuse me insulin until my blood sugar was high enough to need substantial correction.  When I protested that I did not enter the hospital with high numbers and that their methods were less than logical, the nurse said to me, “I know, my boyfriend is a diabetic, and that’s how he does it too.”  No, honey, that’s how every diabetic on the planet does it.  Only when I refused to eat until I was medicated or allowed to speak to a doctor was I given anything.  The doctor told me the policy was based on the unlikely possibility that I would crash in my sleep and never recover.  Even unconscious you can fix a low blood sugar in a  hospital, and it would have taken a lot more than what I needed to put me in that position.

On a recent trip for a viral infection I resorted to hoarding juice and sneaking in my own testing supplies to self-treat.  Let me assure you, this is no easy task when one is half conscious from a stomach bug.  Still, if I had not taken my own measures I would have not been able to fix an extreme low that was ignored for almost an hour.  We cannot let this kind of  situation exist.  How many patients have not healed or been kept in hospitals for extended stays because their diabetes is not being properly managed by the people charged with caring for them?  Then to have them tell me I need to just trust the professionals who have time and again left me in worse condition than when I started because they have the big fancy titles, degrees, and several years of overpriced education is ludicrous.  Prove to me you really deserve my faith and you will get it.  Deny me insulin based on some protocol based in fear of far-fetched risks and you will not.

I really have no idea how to solve the problem, I just think it needs to be  brought to the attention of anyone and everyone who will listen.  Diabetes may be ever evolving as far as treatments and care, but the basics have not changed.  It is imperative that hospitals start paying attention and educating their staff.  I am tired of being approached like a bad child and lectured like I have no clue how to take care of a condition I have had for almost two decades by people who keep making me sick.  Does this make any sense to you, my friends?  Do you have any similar stories to tell?  Maybe we can gather them up and send them to somebody who can do something.  I fear, more than likely, that person doesn’t exist and we will have to make our own change.  Either that, or start hoarding those little juice cups that come with breakfast.

Go now, readers, and test your blood sugar.

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